Helpful Resources
Here is a comprehensive guide to some of the most helpful resources available to individuals suffering from dementia and their families.
1. National Organizations
• Alzheimer’s Association: This leading organization offers a wide range of resources, including a 24/7 helpline (1-800-272-3900), support groups, educational materials, and advocacy. Their website also provides information on local chapters and events.
• Alzheimer’s Foundation of America (AFA): AFA provides a helpline (866-232-8484), educational webinars, and support groups. They also offer memory screenings and a wealth of information on their website.
• Dementia Society of America: This organization provides educational resources, online events, and a comprehensive guide to understanding dementia. They focus on increasing awareness and providing support to those affected.
2. Government and Public Health Resources
• National Institute on Aging (NIA): Part of the U.S. National Institutes of Health, the NIA offers extensive research-based information on dementia and Alzheimer’s disease. They provide resources for caregivers and updates on the latest scientific findings.
• Centers for Disease Control and Prevention (CDC): The CDC offers information on brain health, caregiving, and public health initiatives related to dementia. Their website is a valuable resource for understanding the broader impact of dementia.
3. Local and Community Resources
• Area Agencies on Aging (AAA): These local agencies provide services to older adults, including those with dementia. They offer support such as meal delivery, transportation, and caregiver respite services.
• Local Support Groups: Many communities offer support groups for individuals with dementia and their caregivers. These groups provide a space to share experiences, gain support, and learn from others facing similar challenges.
4. Online Resources and Tools
• Alzheimers.gov: This comprehensive website offers information on symptoms, diagnosis, treatment, and caregiving. It also provides links to local resources and clinical trials.
• Caregiver Action Network: This organization offers resources specifically for caregivers, including tips, tools, and a community forum for sharing experiences and advice.
• Teepa Snow’s Positive Approach to Care: Teepa Snow is a renowned dementia care educator whose website offers videos, webinars, and educational materials to help caregivers provide compassionate and effective care.
5. Educational Materials
• Books: There are numerous books available that provide insights into living with dementia and caregiving. Titles such as "The 36-Hour Day" by Nancy L. Mace and Peter V. Rabins offer practical advice and support.
• Online Courses and Webinars: Many organizations provide free or low-cost online courses on dementia care. These can be invaluable for caregivers looking to enhance their skills and understanding.
6. Technology and Apps
• Memory and Brain Training Apps: Apps like Lumosity and BrainHQ offer cognitive exercises that can help individuals with dementia maintain mental agility.
• Medication Management Apps: Apps such as Medisafe can help manage medications, providing reminders and tracking dosages.
7. Financial & Legal Resources
• Elder Law Attorneys: Consulting with an elder law attorney can help families navigate the legal and financial complexities associated with dementia care, including power of attorney and estate planning.
• BenefitsCheckUp: This service from the National Council on Aging helps older adults determine their eligibility for government programs that can assist with healthcare and other needs.
8. Dementia & Driving
• The folks at Warner Law have put together a comprehensive guide, which can be found here: https://www.wvpersonalinjury.com/dementia-and-driving/
While dementia presents many challenges, a variety of resources are available to support individuals and their families throughout the journey. Whether through national organizations, local community services, or online tools, these resources provide valuable information, support, and assistance. By taking advantage of these options, those affected by dementia can find the help they need to navigate this complex condition with greater ease and confidence.